NYU Langone’s Comprehensive Neurofibromatosis Center offers personalized and compassionate care for children and adults with neurofibromatosis (NF) types 1 and 2 and schwannomatosis. These disorders can cause tumors, which are usually benign, to form on nerves.
Care of Neurofibromatosis
Our team diagnoses and treats all types of neurofibromatosis and schwannomatosis.
These conditions can affect many parts of the body. Because of this, we have put together a team of specialists to address the challenges our patients may experience. These specialists are part of the world-class team at NYU Langone.
We are committed to researching better and safer treatments for people with NF. We lead clinical trials for NF, and are the only New York member of the Neurofibromatosis Clinical Trials Consortium. We have received the Affiliate Clinic designation from the Children’s Tumor Foundation, a nonprofit organization committed to ending NF through research.
Our nurse coordinator discusses your needs by phone or email and determine which of our doctors best matches your specific condition and concerns. All prior imaging and medical records are requested. A social worker may contact you to assist with any special needs you may have.
Your First Appointment
At your first appointment, a detailed physical and neurological exam is performed and all previous records and tests are reviewed. Depending on your diagnosis, we may recommend additional tests, such as imaging studies and genetic testing.
The results of these tests will help determine the care plan that is best for you. Other NYU Langone experts—including behavioral and learning specialists, geneticists, neurosurgeons, orthopedic surgeons, audiologists, plastic surgeons, and ear, nose, and throat specialists (also known as otolaryngologists)—may assist in your care.
Our Team of Doctors
Doctors at the Comprehensive Neurofibromatosis Center come from a range of specialties including oncology, neurosurgery, and otolaryngology.