Support for Myelodysplastic Syndromes

NYU Langone hematologists at the Perlmutter Cancer Center continue to be an important part of your care after you receive treatment for myelodysplastic syndrome.

You may visit your doctor every few months so he or she can check blood cell levels and assess any symptoms you may be experiencing, such as weakness and fatigue or problems with bleeding. Your doctor may perform a bone marrow aspiration and biopsy if he or she suspects the condition has come back or progressed.

Throughout treatment and follow-up care, rehabilitation specialists, psychologists, and social workers can help you manage your physical health, as well as your psychological and social wellbeing.

Weakness and Fatigue

Physical and occupational therapists at NYU Langone’s Rusk Rehabilitation offer a program of strength and aerobic exercise to address weakness and fatigue caused by myelodysplastic syndromes or their treatment. After an evaluation, our doctors can prescribe a rehabilitation program, with the goal of optimizing your independence at home and in the community.

Psychological and Social Support

One-on-one counseling sessions with a healthcare provider trained to address the needs of people with myelodysplastic syndromes are available at Perlmutter Cancer Center. Counseling can help you and your family cope with any stress or anxiety you may be experiencing.

NYU Langone social workers are available to help you address any financial matters or logistical challenges that may arise throughout your care, such as handling issues with insurance reimbursement or traveling to medical appointments.

Supportive Care and Integrative Health Therapies

People who have myelodysplastic syndromes may experience side effects, either from the condition or its treatment. Supportive care experts can help manage side effects such as fatigue, loss of appetite, and stress, helping to improve your quality of life.

Doctors may recommend integrative health therapies, such as yoga and massage therapy, to help reduce stress and enhance wellbeing.