Recovery & Support for Children with Congenital Kidney & Urinary Tract Problems

Children with congenital kidney or urinary tract problems may need lifelong help from a variety of specialists, including nephrologists, urologists, nutritionists, and social workers. Our doctors coordinate care for children through Hassenfeld Children’s Hospital at NYU Langone, and ensure that your child gets the follow-up exams or treatments he or she needs during adulthood. 

Our child and family support services and resilience programs are provided by Sala Institute for Child and Family Centered Care.

Follow-Up Care

Our specialists closely monitor children who have any type of congenital kidney or urinary tract problem for signs of complications. These may include urinary tract infections; hypertension; chronic kidney disease; growth problems; or a dangerous buildup of acid in the blood known as acidosis, which can occur in children with reduced kidney function. Our doctors can prescribe medications to manage some of these problems.

Nutritional Support

Children with a kidney or urinary tract problem are at risk for chronic kidney disease. Our nutritionists can recommend a kidney-friendly diet to prevent the buildup of substances that can cause further harm to the kidneys, such as sodium, potassium, and phosphorous. Our specialists may also prescribe supplements to promote growth and development, such as vitamin D, iron, and folic acid.

Managing Medications

Children with a congenital kidney or urinary tract problem who develop chronic kidney disease and related complications may need to see multiple specialists and take many kinds of medications. Our doctors can refer you to a social worker who can help you and your child manage medications, doctor visits, and dietary limitations. He or she can also put you and your child in touch with organizations that offer education and emotional support.