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NYU Langone doctors help children with hemophilia manage their symptoms and live as normal a life as possible. Our specialists, part of Hassenfeld Children’s Hospital at NYU Langone, offer access to resources and services that your child may need to cope with frequent intravenous (IV) infusions and other aspects of treatment.
Our child and family support services and resilience programs are provided by Sala Institute for Child and Family Centered Care.
When started early, treatment for children with hemophilia can usually prevent serious bleeding episodes. However, many parents still worry about their child’s safety. Our specialists offer guidance on which sports and activities are safest, and prescriptions for medications that can be used during emergencies. Our doctors also collaborate with your child’s pediatrician, caregivers, and educators to make his or her environment as safe as possible.
In most instances, treatment with clotting factor replacement therapy can prevent repeated episodes of bleeding in the joints. When it occurs, however, the bleeding can lead to pain, inflammation, and joint damage. Children who experience occasional pain or swelling may find relief by applying ice or heat to the affected area.
If more persistent joint pain develops, our doctors may refer your child to a Rusk Rehabilitation physical therapist. The therapist can teach your child exercises and other techniques for reducing swelling around the joints and increasing his or her range of motion. The therapist can also provide tips on how to eat a balanced diet and maintain a healthy weight to avoid putting too much pressure on the joints.
Routine dental care can help prevent bleeding gums in children with hemophilia. If necessary, our doctors can prescribe medication that can reduce the risk of bleeding during dental procedures. They also remind you and your medical and dental providers to avoid giving your child medication that can increase the risk of bleeding, including nonsteroidal anti-inflammatory drugs (NSAIDs) such as ibuprofen or aspirin.
Experts at Hassenfeld Children’s Hospital offer a variety of support groups to help children with hemophilia and their parents and siblings cope with issues surrounding treatment, safety, and the emotional aspects of living with the condition. Support groups address a variety of topics, such as what to do if your child misses school because of treatment, how to decrease anxiety in young children who have repeated IV infusions, and how to manage health insurance questions and concerns.