Support for Arthrogryposis in Children

At Hassenfeld Children's Hospital at NYU Langone, care for children with arthrogryposis goes beyond medical treatments for muscle and joint stiffness and other symptoms. We also offer child and family support services and resilience programs, which are provided by Sala Institute for Child and Family Centered Care.

Care Coordination

A wide range of specialists may be called upon to care for a child with arthrogryposis, especially when a child has an underlying medical condition. Our hospitalists work with orthopedic surgeons, physical and occupational therapists, nurses, and child and adolescent psychologists to ensure the seamless coordination of care before and after any type of treatment.

Our hospitalists are also pediatricians who can identify medical concerns that may arise during surgery, such as difficulty inserting intravenous (IV) lines because of a child’s small size. Hospitalists can also introduce families to anesthesiologists so that parents know what to expect during and immediately after surgery.

Assistive Devices

Our physical and occupational therapists understand a child’s evolving needs, from infancy through childhood and beyond. Our therapists can recommend assistive devices that can be adjusted to grow as your child does, helping your child to reach his or her highest potential.

Counseling for Children and Families

Living with arthrogryposis can be difficult, especially if it limits a child’s ability to participate in everyday activities. Psychologists at Hassenfeld Children’s Hospital can help children and their families to cope during all stages of treatment.

Family Education

Arthrogryposis is a complex condition that can affect children in many different ways. Our doctors and nurses provide educational materials to help families understand the condition and how it can be managed.